This presentation explores the unique needs, challenges, and opportunities in providing compassionate end-of-life care for individuals with intellectual and developmental disabilities. Attendees will gain an understanding of hospice care, best practices in communication, advanced care planning, and interdisciplinary coordination, as well as how hospice teams can support individuals, families, and care providers through a person-centered and dignity-driven approach.
Our goal is to increase awareness and understanding of how hospice can support individuals with I/DD at the end of life, and to equip care providers with strategies for delivering compassionate, person-centered care that honors each individual’s dignity and unique needs.
This presentation will cover:
- Overview of hospice philosophy
- Common barriers and misconceptions around end-of-life care, especially for people with I/DD.
- Best practices for communication, decision making, and advanced care planning.
- The role of interdisciplinary collaboration between hospice team members, families, and residential providers.
- Strategies to ensure dignity, comfort, and inclusion throughout the dying process.
On This Page:
This presentation focuses on providing compassionate end-of-life care for people with intellectual and developmental disabilities (I/DD). It explains what hospice care is, addresses common challenges and misunderstandings, and offers best practices for communication, care planning, and teamwork among providers and families. The goal is to help care providers deliver person-centered support that honors each individual’s dignity, comfort, and unique needs. This paragraph is a simplified version of the content on this page of The Coordinating Center’s website. This website includes these summaries to help make it accessible to as many people as possible.
